Tuesday, 26 March 2013

Rocky learns to pull himself up...

One minute he's sat still... 

The next he's crawling... 


He's pulling himself up!

This is amazing... 


I can't believe I missed him standing up! He was so proud of himself Hoff said, but I was away and didn't see it!


Ah Well, lots of time to watch him do it when I'm home!

Sunday, 17 March 2013

Rocky learns to crawl!

Rocky learnt to crawl today..... He learnt to bloody crawl! *sighs*

I am so pleased I was there to see it, as I'm going away for a little while and didn't want to miss him get to that milestone but he is growing up so fast.... he needs to slow down a bit so I can take it all in!

It is so important to make note of all these little things, as your memory can disappear at any time... as I well know. Today I tried really hard to remember when Kyd started crawling and I have NO idea. It has really brought to light how much I missed out on due to PND, I know I would have been so very important at the time but my brain thought it wasn't important enough to keep hold of.

So he's crawling now... how long before he walks??

Place your bets now!

Wednesday, 13 March 2013



All these words could have described Rocky last night!

All because of 1 thing....


We have a tooth! His 1st one EVER! 

It is very exciting and very strange all at the same time.

Kyd didn't get all of his teeth he still hasn't produced some of them, which is apparently normal for kids with Down Syndrome, but I don't think any of his came through until he was coming up to a year... Don't quote me on that I have no idea if that is accurate as I don't remember... you could tell me to check his Red book but... I lost it years ago during moving from house to house like the littlest hobo.

So We have just started this getting teeth journey and I have already been told 50 million different nuggets of advice and no doubt will get millions more but if you have any that you feel are a sure thing please let me know!! I like to experiment with ideas.

The Day I Drank Tea With An Astronaut

That sounds like the title of a children's book doesn't it?!

But no it was just another day in the life of me.

I was invited to Florida's 500th birthday party by VisitFlorida yesterday and we ate cake, drank tea and chatted with an astronaut from NASA in Camilla's Tea Room in Carnaby Street.... you know as ya do...

When I walked in I saw a man in a Blue jump suit... I thought 'Ahhhh look he's come in costume that is dedication!'... no that was his uniform.... his actual uniform, NASA badges and everything.

Captain Jon McBride is a retired Astronaut from NASA (the actual NASA, like the one that goes into Space and stuff) who now works for the The Kennedy Space Centre's Visitor Complex in Florida. What a lovely man he is and he has SO many stories. He is 1 in about 500 people on this earth who have been up into space! So I am so privileged to have sat and drunk tea with him... I'm all geekily excited by it!

He was there to explain about the Visitor Complex and what they offer though, not to HobNob with stars like me... *chuckles*

I had never even thought about the Kennedy Space Centre for one of the destinations in our trip to Florida later this year but how AWESOME would that be? 

You can even have a gourmet lunch with an Astronaut whilst you're there!

Ohhhh I'm all excited! This is now on our 'Must Do' list and Jon has promised to come and meet us there and have lunch with us... because he's pretty cool like that!

Kyd is going to be OVER THE MOON! (excuse the pun).

Thanks Jon and Thanks VisitFlorida too!

Monday, 11 March 2013

I got on my knees and said....

'Mummy beware I am ready to crawl and I will do it when you aren't looking and I WILL break everything'

Yep Rocky is on his knees and ready to crawl!

God help us all!

Stair Gates are up, plug sockets covered, anti finger trappers added to doors and we are prepared for Tornado Rocky to hit within a few weeks.

Devastation avoided.... for now!

Thursday, 7 March 2013

Cherish the time you have... RIP Matilda Mae

Today saw a well known and loved Blogger, Jennie from Edspire, go through what any parent dreads to do.... bury their baby and say a final goodbye.

Matilda was 9 months old and full of life when sadly she was taken to be an Angel.

SIDS (Sudden Infant Death Syndrome) takes the lives of many babies each year and I know it is a devastation that every parent dreads. I for one have been taught so much by Matilda's passing. It hit home and it made me rethink a lot that I take for granted in this life and whilst being a mum.

I spent this morning battling a very distraught 10 year old boy about something as trivial as dressing up as the Hulk... (see my previous post)... and as much as it made me sit and cry because of the reasoning behind it, after I managed to get him to school, in the only ME time that I had today, I cried for Jennie and all I thought about was...

I need to cherish these moments, however hard as I wouldn't change them for the world and I would miss them if they were gone.

I hope and pray that everyone in this world looks at their loved ones tonight and gives thanks for them. Gives them praise for the things that they love about them and tells them more than once that they love them.

Tonight I held Kyd and Rocky tight before bed time and we sat and laughed about the silliness of this morning and we held on to each other tight.

I thank God everyday for my life, my kids, Hoff and all my loved ones.

Sometimes we take things for granted.
Sometimes we look over things that really matter, to find the things that don't.
Sometimes it takes a tragedy like Matilda Mae's passing to wake you up and make you see life for what it's worth.
Just Sometimes...
 One family's tragedy can save lives and make people think.

This alone makes Matilda Mae's life worthwhile.
This alone doesn't make Matilda Mae an Angel.
Matilda Mae was born an Angel.

World Book Day 2013 & The Big Kyd Meltdown!

Kyd is pretty well behaved... well, when he wants to be. 

He has his very hairy moments though and he can re-write the way you react and deal with things with just one sad look of dread and a look of deep distress.

This morning I went from thinking he was being awkward to realising that he was actually just confused, worried and maybe even scared of something as silly as dressing in something different to go to school in. That or the whole thing was over the inability to express his feelings properly and either way it was explosive.

He loves a good party, loves to dress up and loves to act silly... However he doesn't quite understand when you swap his everyday school costume (his uniform) for a completely random one or his own clothes. 

He's 10 and has been at school for 5 years already... it used to be OK, he used to really look forward to own clothes day or dress up day... 

Not any more!

I don't understand what has changed?!

We've had so many issues recently with the whole thing. 

I used to just say to him about it the day before, show it to him, lay it out ready and then he used to think about it, sleep on it and he was happy to get dressed in whatever it was in the morning.

Now, however, he goes into COMPLETE meltdown mode!

It starts with a 'NOPE' and a 'I don't want too' and me saying 'but everyone is in a costume it'll be really really really fun!'.

It ends with a complete tantrum, stressful and dramatic tears, screams, kicking stuff and not even getting out of his PJ's and me saying 'It's OK you don't have to, it will be OK I promise' out of pure confusion, frustration and guilt, whilst avoiding the flinging arms and kicking out legs of a frustrated and angry Pre Teen.

It seems that even the suggestion that he does something different for school was just enough to push him over the edge. I wasn't forceful or angry with him and I tried so hard to calm him down so it didn't get to that stage. I just couldn't. He was just so far gone and into the tantrum that he was inconsolable.

I have no idea what has created this whole thing but this morning he looked so confused and upset at even the thought of wearing something completely different to go to school in and I felt so awful that I had even suggested he wear it and caused so much hurt inside him.

I tried to defuse the whole situation by saying we could pack it into a bag and he could decide at school thinking he had the best of both worlds then as I know he'd get to school and then he'd feel sad if he was the only one there in his uniform.

He just said 'No leave me alone, I feel sick, I don't want too, I don't want too' whilst screaming and punching the floor.

I then told him it was OK and that he could just go in his uniform and then he started with the 'I don't want to go' 'I hate it' &  the 'I'm not very well' 's

What can you do with a child who is so big and strong willed that you can't get to him to cuddle him or fix it for him without getting hurt.... 

You put his favourite TV programme on and wait for the storm to pass... that is what you do!!

Once he had calmed down I heard the bell ring for playtime from the school (our house backs on to the playground) I thought that maybe by showing him that others were in their outfits he might calm down and go in. 

It worked. He saw them all in colourful clothes and funny outfits and he said 'I go school now, I go as Hulk...'

Uhhhhhh HULK? I have no Hulk outfit?! 

'Why Hulk?' I said

He said 'I like Hulk, like Hulk in Tesco's'... 

Ahhhh Now I get it. I said he couldn't have a Hulk costume because it was too small and they didn't have his size! 

Was this the cause of the whole thing? Did he not want to go in because he didn't have the costume he wanted? Or was he just confused and distressed?

Either way I tried to push the situation aside for a second and we did a quick DIY Hulk costume... How?

We smothered him in cheap Green Eye shadow form my random collection and cut up some old clothes so he looked like he'd burst them open... He looked awesome and he was so happy he bounced to school with a huge smile, no sign of the tantrum or the distress of a few hours before... I swear school will start to think I make this stuff up... if they don't already!!!

Success though I think!

I would love it if he could explain his feelings but no matter how hard I try I can't get it out of him as he can't seem to explain.

It might have been the hormones of a Pre Teen with Down Syndrome or the confusion of something new being thrown at him all of a sudden or a case of I wanted to be Hulk.... but at the end of the day he is just a boy, trying to understand life and I have to realise that these tantrums, confusions and distress are part of life now and try and find some way of defusing these situations before they get to the point of no return like today... and to stop feeling guilty for him not being able to tell me what he wants, because the guilt DOESN'T help!!!

Parenting is hard bloody work sometimes!!!